I have been very sick. Actually, I haven't been quite right for the last few years. But now, I am barely functional on a day to day basis. I started school full time, plus I work 34-36 hours a week. After a few weeks of this, I started to get sicker than I've ever been. It came to the point where I was so dizzy I could barely walk. I kept thinking I was going to pass out, and I started to get chest pains. I ended up a the ER once in August for chest pain. They sent me home, said I have chostocondritis (inflammation of the cartilage that connects the sternum and ribs).
Like two months later, I was at work and got really bad chest pains that almost made me pass out. Again, I went to the ER. They found nothing wrong with my heart. I went to my regular doctor, and he listened to my heart and he said he could hear a clicking and a slight murmur. He said I probably have mitral valve prolapse, or a valve disorder. He ordered an Echo-Cardiogram. I got in for that 7 days later, and in those 7 days, I continued to get worse.
I couldn't climb stairs without getting sick, my heart would pound and I'd get dizzy, and sometimes get headaches. I was miserable. I started missing work and school. I was so tired all the time. I would get extremely fatigued just walking across a room.
I had my Echo done and tried to move on with life until I got a diagnosis. In the mean time, I had a lot of bloodwork done. My platelets were high, and rising. They were slightly high at my initial ER visit, and within a couple of months they had risen steadily to be extremely high. They put me on an aspirin regimen and scheduled me to see a Hematologist.
I've been waiting for the results from the Echo, and actually got into the hematologist before I heard any results. Luckily, the hematologist was at the cancer center at the same hospital I had the Echo done at, and he was able to pull the results for me. All my heart valves appeared to be fine. This doesn't explain what my doctor (and a second doctor at the same place) had heard in my heart.
The Hematologist couldn't tell me much of anything. He did as if I have Endometriosis, which I replied "not that i know of." However, I have suspected I might have that condition for a few years now, just never looked into it. Lately I have been experiencing painful sex to the point of not wanting to have sex at all. He ordered some more bloodwork. I have had my blood drawn so many times in the last month, my veins are shot like a heroin addict. I am difficult to get blood out of on a good day, but this time it took 4 nurses. They ended up taking it (painfully) out of the large vein that runs down the underside of your arm, right by the elbow. That hurt.
He also ordered an ultrasound of my spleen. I go to that on Thursday. In the mean time, I'm waiting.
The last two days I had a lot of pain that I associated (at first) with my period. They were unlike my normal period cramps, and I honestly can't even tell you when my period is due at this point. I just ignored the pain at first, until it started getting really bad and I noticed it was concentrated to my left side. Night before last it was so bad I almost made another trip to the emergency room. But I have just had enough of those. The pain was from somewhere under my ribs on the left side, all the way down to my hip and radiated into my pelvis and my leg. It was awful.
That has kind of gone away between yesterday and today, and I have not started my period which leads me to believe it's unrelated.
I don't understand how we go from my heart to my spleen. All I know is I am so sick, I can't even function day to day. I guess the spleen is kind of in the general vicinity the heart is, so maybe I was mistaking pain there for heart pain. I don't know.
I am at a risk for blood clots because of the high platelets. I am miserable. If they rise any higher (with this bloodwork they just did on Friday, it will tell us if they've gone any higher), I may end up in the hospital.
I'm so confused, and I have grown to (already) hate doctors and hospitals. I just want an idea of what is going on with me. Nobody wants to tell me anything. The bloodwork the hematologist ordered was very extensive, more extensive than anything they've done to me so far, so maybe it'll tell us something finally.
I got all my blood records so I could actually read them myself. Ironically, the very FIRST time I went to the ER for chest pains, they told me my bloodwork was normal. It actually was not. My platelets were high (just barely above borderline). And my Traponin levels (heart enzyme) were borderline high, and it said right on the bloodwork that this was in line with myocardial injury and I should be retested in 2-4 hours. Which they never did, they sent me home.
I am waiting on copies of the rest of my bloodwork from my other ER visits where they tested my heart enzymes. I am very curious. Apparently you have to look for shit yourself to get any answers. My platelets were high then, but they didn't even tell me that. Maybe if I had known, finding out that my platelets were sky high and rocketing higher two months later wouldn't have been so shocking.....
So anyway, this is why I haven't been around a whole lot. If I'm not in hospitals or off getting tons of tests done, I'm on the couch comatose.
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